Today was Hannah's quarterly eye exam. JRA has an unfortunate connection with severe eye diseases like uveitis, which is a silent disease leading to blindness. JRA kids who have a positive ANA (Anti-Nuclear Antibody) are at a high risk for such eye diseases. For this reason, we see a great pediatric opthamologist who is able to see if white blood cells are present, which is the cause of uveitis.
We were glad to hear that Hannah's eyes were 'clear' but surprised to learn that because the arthritis has worsened, the risk for Uveitis is decreased. hmmmm. Interesting, we get to worry less with her eyes, because the arthritis has worsened. The human body is just amazing if not a bit confusing!
The photo represents an early birthday visit from Grandpa Bucky and Grandma Georgia this weekend. They hadn't a clue that Hannah's favorite author right now is Jane O'Connor, better known for her "Fancy Nancy" collection of books. Not only did Hannah get two copies of Fancy Nancy books but an entire dress up kit, as featured by our very own "Fancy Hannah". Thanks Bucky and Georgia, we're so happy to have you in our lives!
2 comments:
We know what your going through. Our daughter Mckenzie was diagnosed with MCTD (JRA & Schleroderma)in Feb of 2007. She too has to have an eye exam every 3 mos. She is six now & we have to give her a shot of methotrexate every Fri. She sees Dr. Sundel in Boston as well. Would love to here from you or any of the other families that you have heard from. Our local paper did a story on Mckenzie in August of last year after we returned from the Arthritis Convention in Hershey PA.
Please contact us at: wendyjhr@msn.com
Sincerely,
Scott, Wendy & Mckenzie Rowbotham
Plymouth NH
Hi - My daughter, BAILEY is 3, she has JRA. We have a blog page for her:
thewarrens-baileysmama.blogspot.com
Our email is: war3006@charter.net
if you want to talk.
Kim - Alabama
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