Summer Fun!

Enjoy the slideshow!  We've had a ball this summer, here are a few of our favorite moments!

Photo and video editing at www.OneTrueMedia.com

Parker at the Park!

Here's our busy boy!  He can never get enough of the park and climbing apparatus!  Parker's proudest moment this month?  Learning to pump on the swing all by himself!  Congrats Bubby!

Medical Update

June was filled with check ups and blood draws for Hannah.   

Her eyes checked out just fine, thankfully!  And Boston Rheumatology was pleased with her progress.  No added joints, no added medications!  YIPPIE!  We were just thrilled to hear this.

The only concern we (and the doctors) have is her immune system.  It is compromised with the arthritis alone but the addition of her meds compromise it further.  This is why it took her little body 10 days to fight off a 105 degree fever.  In general, it takes Hannah at least twice as long, if not longer, to fight off infections.  

Fortunately:

*she is a very good hand washer

*we have so much purell (in the car, in the house, in the back packs)

*we boost with vitamin supplements

*we eat healthy (aside from the occasional Wendy's visit!)

So, we're doing what we can, on our part anyhow, to ensure that she is clear of germs.  I always felt like I was a 'laid back' kind of mom about common illness (tummy bugs, colds, etc) but now that Hannah is so susceptible to infection, well, not so much.

The dilemma I do have right now is about vaccines.  Hannah is up to date, technically.  There area  slew of vaccines/boosters kids need between 4 and 6 years of age.  She is due for more of the polio/pertussis, etc.  Given her weak immune system and the slightest chance of infection from said boosters I have opted to hold off for now.  I have heard about some disturbing possibilities with vaccines and RA and the meds for RA.  So, I've got some research to do.  Fortunately, our doctors will have medical reason for any issues we may face with schooling.  

Mother's Day Tea

Hannah's school does this wonderful thing each Mother's Day.  They have 'tea' for moms!  

I was given clear instructions from Hannah to wear a dress and bring a purse.  I really wanted to enjoy this time with just Hannah in her space at school, so Parker stayed home with a sitter.  

As I walked into the school, I was ushered by Hannah to a beautifully set table with fresh flowers.  I had a special card and gift placed beside my name card.  The gift: a pin with a painted face that Hannah made herself.  

The children did all the work for this shin-dig.  From setting the tables, to preparing the delicate snacks and the best part: some singing!

Arthritis Walk

In May we attended the Arthritis Walk with friends and family in honor of Hannah.  We raised more than $3,000.00 to aid in the research for a cure for JRA.  

The support that pours in for Hannah continues to amaze us.  It is truly humbling to have such wonderful and thoughtful people in our lives.  

So thank you to everyone who helped with the walk, it was a complete success!

A special thank you to Logo Loc who donated our tee shirts for  "Team Hannah"

Sooooo Behind!

I feel like I am so behind on everything and have been for months now!  I thought for sure I would keep up to date on this blog.  HA!  Thanks to those of you who keep checking back for updates.

It is another rainy day here in NH.  A good day to catch up on tasks right?  I've cleaned the art closet this morning, done a few errands, caught up on dishes, etc.  So my hope is to post some of the mentally created blog entries from months ago!